where the heck did the summer go????

dang, can you believe it is November friggin 12th? OMGosh, where did the summer go....it was too fast...come back summer, come back.......

well as you can tell, its cold here in New Hampshire tonite, like 20 something, e-gads, yanno cold is the worst thing for me so you know I broke out the footie jammies this weekend LOL

Not much more happening with me yet, I am getting the K infusions every 2-3 weeks for 5 hours and it is slowly starting to help somewhat; I still have my baddays but now I can have a couple good days too :)

I go next week, well I think its next week ( dang swiss cheese brain these days but I blame the meds) to have my pump removed and I will be so very happy to have it out; it never helped and it only made things worse. I gained weight, my bad hurts like it has never hurt before and I get these knife stabs in my sides everyday....but did anyone listen while I was telling this for the last friggin year....nooooooooooooooooo, I'm just the patient oy! Anywho, its coming out and I'm thrilled and this will be my last surgery dangit, enough is enough ( I wont get into having to be admitted in the hospital to get that tooth out....what a day that was LOL)

Okay, gunna go to bed; H&P tomorrow early a.m., least I will get a Boston cream donut afterwards LOLOL

ttfn and cya next tuesday ;-) wink wink

gawd what day is it ~ eesh

yup, one of those day's where Im not sure its Thursday or Wednesday or wtf.....okay, I just went and looked and realized why I tried to forget what day it is....it is Thursday and tomorrow I go to the oral surgeon to have some work done....no wonder I wanted to forget what day it is LOL~

Okay, to catch you up on the RSD treatment I went for, well it worked awesomely < is that a word...hmm, it should be if its not hehe, but seriously, the infusion lasted about 5 hours and my hands felt so good and warm for the first time in a very long time! so they are calling my trial a sucess and I get to go back for another one at a stronger dose, BUT, its not for 4 more weeks....which suxs because the more you get, the better one's chances at a longer remission, but I am just the patient and cannot tell these doctors that, afterall, they are the one's whose parents spent all the money on medical school eh. I know I shouldn't sound so chitty about it because I am very greatful to be given this chance at this med, and to have my medicare pay for it is just a blessing, no one else would accept my Medicare for payment....which is b-chit but I won't get started on that topic today, don't think my hands could take it LOL but one of these days I'm going to write down just what I think of Medicare...and plz dont get me wrong, I am very thankful for it but um I'm the one who worked all those years putting money into it, it is my money afterall, I didn't ask to get hurt and disabled and woud give anything to be able to work again and feel somewhat human again.....oopsie.....im starting to rant cuz I feel my bp rising so Im just gunna end here now before I get to cheesed!

ta ta for now, gunna go make some nacho's...my last good crunchy before tomorrow..who knows how long it'll take to heal up, might not get a taco for weeks...ack LOL

cya next tuesday if not before

4th o July 2007

Well today is the 4th of July, wooopiiiieeeee. another day to me but on a good note, the 11th is getting closer and that is when I go to Boston to see a new doctor and find out if they will accept me for the new treatment for my RSD, gawd I pray they will accept me, they just gotta! I need to get back to my ole self or at least quit hurting all the friggin time, ug.

k, the reason why Im writing today is to add a picture I created with this program found online, i think it was borded dot com LOL but the pic turned out kewl beans so Ima gunna add it

taters everyone, happy 4th

Dee and RSD

Hello Everyone! My name is Dee and I live in the lovely state of New Hampshire, well lovely except in the winter...I hate snow lol. I have a medical condition called RSD/CRPS after a work injury almost 3 years ago. I've had more treatments than I care to remember, with the latest being a intrathecal pain pump - biggest mistake ever! Please, if you are thinking of getting one of these, think twice...no, think a thousand times before agreeing to it! I am going to go for a new experiemental treatment on July 11, 2007 and if this works, I could be in remission! yahooo! That would be awesome! and then I can get this alien out of me ( the name I fondly call my pump). Okay, don't want to write a book on the first day lol. I have a wicked sense of humor even though I hurt/am in pain 24/7 but laughter does help so if you have a great joke, please let me hear it, I will return the favor with a good one too :-) Talk later on....